A tale of PCOS, infertility, love, life and trying to adapt to the curveballs life throws at us

Saturday, November 3, 2007

You know it's a really, really bad day when you go to bed crying and you wake up crying--with little periods of wakefulness in between just to make sure you can't get a truly healing rest. I woke up this morning asking M what I can possibly do to feel better. Because the pain is certainly not going away; it's just getting worse.

I guess the only thing I know how to do is write about my pain.

I'm no fool. I can put 2 and 2 together. Thanks, Geohde, for reminding me of the name of the condition the perinatologist thinks our baby has--bilateral renal agenesis. Yes, it's fatal. Dr. Google tells me that it's extremely rare; only 1 in 5000 babies have it. As M and I remember what the tech told us (he said he finally found the bladder, but it was empty, which was why he had trouble finding it in the first place), and then think about the low fluid levels, we realize we know exactly what the doctor will tell us on Monday: This child will not live. There is no hoping left. There is only raw pain.

When I drove home from the hospital yesterday, it fleetingly occurred to me how beautiful of a fall day it was. I always love Friday; it's my favorite day of the week. M and I were going to go shopping for baby furniture, which I was really looking forward to. We were probably even going to start a registry! I was just waiting for the doctor to tell me everything was fine with the baby, and then we would start making the calls to family members to tell them the sex. It's a boy. We even developed a short list of names earlier this week.

I'm a planner. My life revolves around my plans, and when I'm in limbo, as with fertility treatments, I feel incomplete. An even worse feeling, however, is when the plan gets disrupted. The most recent time this occurred was when my college boyfriend of 2 and a half years broke up with me a few months after I graduated. I was going to marry him and follow him to grad school. Instead, I was forced to imagine a life without marriage--at least in the near future.

We were so ready to welcome our little boy on March 25. I was ready to quit my job, quit a bunch of my activities and start scoping out the Mommy groups. I had all my maternity clothes, and I had decided I would start wearing them to work next week. My friend in our Bible study group had just announced her pregnancy and I was looking forward to us sharing this time together, eventually arranging play dates for our children.

Our baby boy fetus is now 20 weeks old.

My mother told me my brother was really broken up about the news. He kept saying, "And after all they've been through." He's right--how much pain is one couple really supposed to take?

Does this sound weird? I want to start treatments again. As soon as possible. I just can't give up on the plan. People always say you need a grieving period, but all I can hear is the clock ticking away.

I just wish this didn't have to get worse before it gets better. As you might have expected, there's no way I can carry this baby to term. I respect the decisions of those who might, but I cannot bear to be pregnant with a child that can't live without me. The only question will be how soon I can be...induced...and how bad the labor is going to be. I have no idea how they even do it. I mean, the baby is alive, so how does this work? Why are M and I forced to make these decisions?

67 comments:

Anonymous said...

I'm so so so sorry... I can't think of any words of healing for you... My heart goes out to you!!

Kim said...

If you would like to e-mail with my friend's wife who delivered twins right at where you are, please just let me know. After 19 hours of labor and a broken heart, I'm sure that she would absolutely love to talk with you.

Otherwise, I'm so, so incredibly sorry.

Natalie said...

Gawd, I just can't even imagine how horrible this is for you. To think that you might finally be out of the woods and now this, I don't know that I could imagine much worse for you and your husband.

With regards to your decision to be induced, you probably don't care what I think but I understand the decision and support you in doing whatever you need to maintain some level of sanity. I don't understand what you're going through cuz I've never been there but reading your post all I kept thinking was how can she carry on the next few months knowing how it will end? How would that not be even more horrendous than where she is now? So I guess what I'm saying is do what you need to - only you know what is best for your sanity cuz only you know how really really awful this is.

I'm so so sooooooo sorry you're facing this.

May said...

I am so, so sorry you're going through this.

Melissa said...

Well, I thought about you all night long. I delivered twins at 23 weeks and, of course, it was the hardest thing I've ever done. I wish we would've had a little more time to prepare. We took a few pictures and held them for as long as they were alive, and a little after that, but at the time I didn't want to do much more than that. I regret that decision and wish someone would have been there to guide us on possible things we'd like to do. There are places that take pictures for free in situations like this and they really come out so nice. The hospital gave us the blankets and knitted gowns they dressed them in, but we don't have decent footprints, handprints, etc. like I wish we did. There is just so much to think about, and you need someone other than you and your husband to help you with it. Email me if you want to talk more b/c I'm just rambling: littlemkv@yahoo.com

Alison said...

Ann, My heart is breaking and I have no words for you but I will be intently praying for you, your husband and your boy.

ggop said...

Take care of yourself Ann.
I support your decision and also understand the need to continue treatment. My thoughts are with you..
life sure is unfair.

Waiting Amy said...

This is such a sad situation. I came here from Sticky Bun's blog. I am so very sorry for your news.

I too completely support your tentative decision to not wait until you reach term. I certainly would not be able to bear waiting. I too can understand your desire to return to treatments quickly. But remember that your body and your heart may both need a little time to heal.

Wishing you and M peace in the future. I am so sorry.

megan said...

oh Ann, i don't know what to say. i'm just so, so very sorry. you and your family are in our thoughts. sending many hugs.

BigP's Heather said...

I'm so sorry.

Don't worry about what anyone else says. If you want to cycle, do it. You are the only one who knows what is right for you. When it actually comes time to cycle you may realize you want to wait...whatever.

You are in my prayers. If there is anything I can do for you, please do not hesitate to let me know.

Geohde said...

Dear Ann,

I, more than most, understand the nightmare you find yourself in.

It is beyond unfair to be infertile, concieve and THEN have it not only cruelly snatched away, but in such a manner that you have to make an ACTIVE choice as to what to do.

I couldn't bear to go to term either, and like you, I couldn't imagine any course of action other than immediate fertility treatments again. ASAP.

Ann, I am so so beyond terribly horribly sorry.

I am thinking of you.

If you ever want to 'talk', email me. This is all just so beyond painfully unfair......


xxx


J

Kate said...

I am so, so sorry. No one should have to face this.

Samantha said...

Honey, I don't even know what to say. You have been placed in one of the cruelest positions ever known to expectant parents, and it is doubly cruel after going through so much to just get there.

You should do what you need to do, and we will all be here to support whatever decision you make.

I didn't realize my heart could break anymore this week, but has broken even further after reading your news.

buggsmommy said...

I'm a bit of a lurker, but happened to catch up with what you're going through.

My heart is so heavy for you right now. I too have p.C.oS. I'm so so so sorry for what you're dealing with. Truly.

May you find some peace and do what you need to do for yourself and your husband and little boy.

I wish there was more to say. You're in my thoughts.

PamalaLauren said...

I totally understand why you'd induce and give birth. And it doesn't matter what other people think about what's happening, you have to do what's best for you and that's all that matters.
And there is nothing wrong with wanting to start trying again as soon as possible. Just be careful that you've given yourself enough time to heal.

Nearlydawn said...

So sorry, Sweetie. I can't imagine being where you are right now.

No one is able to tell you guys how to go through this. Only you can decide.

Induce / go to term? Wait a while/start trying ASAP? Those are things that you will have to decide and don't let anyone make you feel anything other than right with your decisions. Promise me that much... This is hard enough without letting others put their own 2 cents into the picture.

I will be thinking of you guys.

thirtysomething said...

I am so so sorry. I clicked over from Stickybun's blog. I will be thinking of you, my heart goes out to you.

Cece said...

Oh sweetie. All I can do is offer big virtual hugs. I'm so sorry.

Anonymous said...

Ann... I am so so very sorry. Really, there are no words. This happening is just too cruel.
You and M are in my thoughts.

Kristen said...

Ann, I just read the news and I just want to say how truly, deeply sorry I am that you are faced with this. I don't know what to say except that I am praying for you and your husband. Praying for your little boy. Praying that all of you will find peace somehow and that the pain will be washed away.

Like the others have said, I will support you and stand by you in whatever you choose to do. I just can't fathom...

XOXO

Anonymous said...

NO, no, no, no, no! Just exactly how much crap are we expected to endure???

I am so very, very sorry for everything that you are going through right now. I wish there was something I could say or do to make it easier but there's not. I can tell you that with my 1st m/c at 4 months I had to go through labor and all and while it was bad, it wasn't as bad as I thought it would be. And the pain, (mentally), does get better. It doesn't ever go away but it gets better.

My thoughts are with you right now. Good luck.

Anonymous said...

I found you through Samantha and just had to tell you how tremendously sorry I am about your son. I can't imagine how amazingly hard this must be for you. While you have no idea who I am, just know that I'm thinking of you and wishing you weren't dealing with such pain.

Bea said...

I'm so sorry. I just heard. This is not fair.

Bea

K said...

My heart is breaking for you. I am so so sorry.

Shauna said...

I'm here by way of a few other blogs that have mentioned you. I am so sorry that you're going through this. I can't imagine anything worse.

I'll be thinking of you.

Searching said...

I am so very sorry. You will be in my thoughts and prayers.

carrie said...

I'm just so incredibly sorry. There are really no words. You both are in my thoughts and prayers.

MrsSpock said...

My heart goes out to you. I can't imagine losing the beloved child you've conceived after so much struggle. Whatever decision you make, you will be supported. I've been the nurse for a young woman who lost her son at 20 weeks. If you have questions about the birth experience and what is done afterwards please feel free to email me mrsspock9@gmail.com.

You'll be in my thoughts today.

Anonymous said...

Hi,

I visited someone's blog & it mentioned abt u. So sorrie for wat u're going thru. Will be praying for u & ur husband. Don't rush to make an decision, wait for a short while then decide.

*Hugs*

Anonymous said...

Omg. I am, words can't even express how sorry I am for you.

Jen said...

I found your blog through somebody else & I just wanted to let you know how sorry I am. I lost my baby boy at 18 weeks in June due to low fluid, so if you have any questions at all about the whole delivery process, please let me know. My e-mail address is on my blog site. I am praying for a miracle for you & you will be in my thoughts.

Again, I am so sorry...Jen

Carrie said...

I lost my baby at 16 weeks and it was the most difficult journey to go on. Just awful. I had all this anger. It was supposed to be ok now. I am so sorry.
I understand the need to cycle quickly too. No, it doesn't take away the grief but it is a focus. Without it all I has was grief and nothing. With it, grief and maybe a different future.

So very sorry x

MLO said...

I'm sorry. There are absolutely no other words that can be in a time like this.

Pax,

MLO

Thalia said...

Ann, it's an utterly awful situation and your grace in the midst of horror is quite something to behold. I am so sorry for the loss involved in having a child who cannot live outside your uterus.

Familyofthree said...

There are no words. I just can not imagine what you are about to face, and about to be forced to endure.

You don't know me, but I will be thinking of you and the journey you and your family are about to face.

Serenity said...

Found you through Megan at exile in kidville. I am so very sorry.

It's not fair. Not any of it.

Thinking of you.

xxx

meg said...

Hi Ann,

I found you through Samantha's blog. I am really sorry for all you are going through right now.

I lost a baby girl at 20 weeks due to polycystic kidneys in both kidneys (very rare). She died in utero before my scheduled induction.

Please feel free to email me (address on blog), if you have any questions or want to talk. I have recently had another loss at 22 weeks, but if I can help in any way, I would be glad to.

Anonymous said...

so so so sorry. I just can not imagine what you are going through.

Drowned Girl said...

I'm so sorry. What an awful thing to happen, totally devastating.

JJ said...

I am so very very sorry....you are in my thoughts and prayers.

Lollipop Goldstein said...

I am just so so sorry. I'm sending good thoughts to all three of you. There are just no good words.

Anonymous said...

I came here from Oro.

I'm so so sorry.

Regarding being induced...you do what you feel is right. Don't let anyone tell you otherwise.

My prayers are with you.

Katarina Jelly Beana said...

I'm so sorry.

Ashleigh said...

I found your blog through Stirrup Queen and just wanted to let you know how very sorry I am. I wish there was something I could do or say that take away some of the pain.

Pamela T. said...

I wish I knew what to say to help make this easier, but there are no sufficient words. So very sorry this is happening...you're in my thoughts.

Meghan said...

Oh my, I am just so sorry you are going through this. I wish there was something I could say or do. I'm thinking of you and your family, you're in my prayers

Michael Evans said...

Ann, this is terrible news. I am so sorry. We will be thinking about you.

Anonymous said...

I am so sorry. This just isn't fair.

JF said...

Ann -- please know that we're thinking about you and your family.

Anonymous said...

I am utterly saddened at this news. My prayers are with you and your son.

Ms. Planner said...

I am here to support you via several other blogger's blogs. I completely support your decision but am just completely saddened that you have to be in this horrible situation. Wishing you all the strength in the world as you go through this. And, peace, too. Yes, some moments of peace would be good...

ultimatejourney said...

Oh, my dear sweet Ann, I'm so very very sorry that you are going through this. You are in my thoughts, sweetie.

Anonymous said...

I am so, so sorry. Please know that you are in my thoughts and prayers.

Anonymous said...

Oh no. I can't believe this is happening to you, I wish there were something I could say or do to help. Just know that I am thinking of you, and I am so, so sorry.

Aurelia said...

I can barely type this, since I'm crying for you. I had to terminate a pregnancy as well. You can find out more about what it's like to be induced if you go to my blog and click under medical termination.

If you need anything, at anytime, please please email me.

Beth Kyle said...

i am so sorry...

E. Phantzi said...

I am so sorry.

Anonymous said...

Wow. I am so very sorry. I'm sure that nothing can help at this point but time, but know that lots and lots of people are thinking about you.

Natalie said...

I'm so so sorry, my thoughts are with you and your family in this difficult (what an understatement) time.

Anonymous said...

Its everyone's worst nightmare, it happened to me too and I understand your need to go on and try again. I can only wish you the strength it took me to get through the worst nightmare of my life. Please feel free to email me if you need details about the induction; artblog06@gmail.com.

HUGS Artblog

Anonymous said...

My prayers are with you! What suffering you must be going through.

Romans 8:16-18, St. Paul says, “The Spirit itself bears witness with our spirit that we are children of God, and if children, then heirs, heirs of God and joint heirs with Christ, if only we suffer with him that we may also be glorified with him. I consider that the sufferings of this present time are as nothing compared to the glory to be revealed for us.”

Faith and prayer saves!

decemberbaby said...

I'm here via Ms. C.

I am so sorry to hear about what youre going through. It sounds like the hardest thing you could have to face, especially after infertility. My thoughts and prayers are with you.

Dr. Grumbles said...

I am here from Oro's link on her blog. I am so very sorry. I can't even imagine getting such heartbreaking news.

Anonymous said...

Here via Oro- heartbreaking. Just wanted you to know there is someone else out here thinking of you and that I am so very sorry that you are having to go through this.

millie said...

Also here via Oro and so very sorry this is how I found you.

I'm so very sorry. Just so very sorry. There really are no words but I am thinking of you all right and wishing I could do more.

Sunny said...

I am without words for you. So SO SO sad. HUGS!

Unknown said...

I know the best wishes of a stranger can't change anything, but I will add mine to the pile, anyway. Just know that I am one more person who is heartsick for you.