A tale of PCOS, infertility, love, life and trying to adapt to the curveballs life throws at us

Friday, December 28, 2007

Schaudenfreude

Ever heard of the word? It's German for "happiness at the misfortune of others." It's not very PC, but it's an entirely appropriate word for how I felt when M told me the story of his phone conversation with Prenatal Care Nurse at Hospital X the other day. I took perverse pleasure in knowing that the phone call probably ruined her day. For your enjoyment, I'm pasting the letter I wrote as a follow-up to that call. Of course, the names have been changed to protect the not-so-innocent. (And lest you forget, I do public relations for Hospital X. Ironic, isn't it?)

Dec. 27, 2007

To whom it may concern:

On Wednesday, Dec. 26, my husband answered a call to our home from Prenatal Care Nurse in Hospital X's Birthing Center. She wanted to make arrangements for my stay in the Birthing Center at the end of March 2008—when my baby was supposed to be due.

The problem was, I was no longer pregnant. My baby, Zachary Andrew, had been stillborn at 20 weeks gestation on Nov. 7, 2007 at Hospital Y (Hospital X's sister hospital). He had been diagnosed with bilateral renal agenesis—a lethal condition—and my husband and I made the decision to induce labor and terminate the pregnancy.

Naturally, the call was very upsetting for both my husband and me. We have been trying very hard to heal over the past seven weeks, and it was difficult to have yet another reminder of where we should have been—the beginning of my third trimester. Prenatal Care Nurse apologized profusely, but the damage had already been done.

Isn’t there a procedure in place for communicating pregnancy loss between OB's Outside Clinic and Hospital X? If there isn’t, shouldn’t there be? The terrible part is, this was not the first time throughout this process that my case was mishandled. On Monday, Nov. 5, after confirming my diagnosis, Perinatologist A at Academic Medical Center Associated With Hospital Y called my OB to find out if I could be induced at Hospital X—my first choice. I understand there was confusion over whether Hospital X's policy allows cases such as mine. I know Rockin' Perinatal Nurse Who Has Become My Advocate and Friend at Hospital X is following up on this issue, so I won’t go into detail. But the fact is, there were people at Hospital X who knew one of my OB's patients had lost her baby. Shouldn’t it have occurred to someone to find out who the patient was and take my name off the database of “moms-to-be” to call?

The labor and delivery nurses at Hospital Y were wonderful, especially given my situation. Perinatologist B, who delivered my baby, was also very compassionate. I would recommend Hospital Y's Birthing Center to anyone. I wish I could feel this way about my own hospital—especially since I hope to someday carry a pregnancy to term.

I do not want any personal follow-up; my husband and I have been through enough. What I do want is for the right people to sit down together and make sure this never happens to another woman. Please, please refine your policies and procedures. It is imperative that the OBs at Outside Clinic have very clear communication with the hospital, and that they fully understand what the nurses on the Birthing Center will and will not do. Thank you.

21 comments:

Kara said...

What grace your letter possessed. I'm not so sure I could have been that composed. My thoughts, good vibes and many prayers are with you and your husband.

May 2008 bring you love and happiness.

Kara

ggop said...

Your job in Hospital X's PR makes this feedback very legitimate and constructive. The letter has also been worded well.

Happy New Year 2008.

BigP's Heather said...

Wow. That is a lot nicer than the letter I would have written them. Another reason why you rock.

nancy said...

Good for you for taking your time to revisit the issue to report it, so it doesn't happen to someone else. How horrible that phone call was for you. ~hugs~

Cibele said...

I had a similar situation happening to me when I had a m/c 2 years ago. It is very upsetting. I never said anything, now reading your letter I should have done the same. Hopefully it will prevent from happening with somebody else.
I am so sorry about you loss. I Hope that 2008 brings you many many blessing

Carrie said...

It is truly unacceptable that communication issues such as these still happen. I'm glad you spoke up. It needs to be said.

Can't have been easy though, and what a calm letter, I would have wanted heads to roll. Not that it would do any good but I'm angry at the world!

Pamela T. said...

What a sucker punch it must have been to receive that phone call. Hopefully your letter will ensure that no other couple has to undergo the same painful experience.

Kathy V said...

Your letter was was very tactful yet it expressed what you were felling. You are right there should be better communication for all people in these kind of situations. There should be some kind information written in your pateint record too. Let us know what kind of response if any that you get from Hospital X. Sorry to hear people are still hurting you while you are trying to heal.

MrsSpock said...

The squeaky wheel generally gets the grease- and I hope your letter will ensure something is done. The last thing you need is a phone call reminding you of the loss. You are a bit more tactful than I was when I overheard an ER nurse talking smack about my husband and his "fake pain" this past spring...

loribeth said...

Great letter. You made the point very well without name calling, etc. (although I'm sure you were tempted...!). It's so sad/horrifying how little protocol there is surrounding pregnancy loss in hospitals, and how bereaved parents should be treated. I've come to the conclusion that what happens to you entirely depends on who is on shift at the time, what if any training they've had in perinatal loss & the mood they're in.

Aurelia said...

I'm sorry you got that call, and so so glad you sent that letter. It's very well written and very very calm, and you really are an amazing person for writing this.

I hope 2008 is easier for you.

Anonymous said...

That was very diplomatically written but forced a very important point. Good on you, as I think it will be very effective this way and hopefully save others from experiencing this.

TeamWinks said...

Very well said. Impressive!

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Natalie said...

Wow, your letter's amazing. Well-written, not crazy-lady-angry that would just freak them out, and clear on what you'd like done and not done. Not many people could do that.

Heather puts it well - another reason why you rock.

Familyofthree said...

I hope your letter finds its way to the appropriate persons, and that this situation never happens to another woman.

Your strength continues to amaze!

Samantha said...

That's an excellent idea to let Hospital X know. There have probably been people who have similarly faced such hurt, and hopefully you'll prevent this from happening in the future.

After I had my chemical pregnancy, my clinic sent out a congratulations postcard to me to remind me to schedule my ultrasound. It seemed to me their communications line needed some work, as this card arrived after my beta was basically nothing. In fact, I first thought it was a condolence card! But I wasn't so brave as you to call them on it.

ultimatejourney said...

I'm exceedingly impressed at how well you handled both this and Christmas.

I hope 2008 brings you the peace and happiness you deserve.

Anonymous said...

Ann, you work in a hospital, surely you've heard of HIPAA rules. Even from one department to another in the same institution there is no sharing of information. Employees only have access to the bare minimum that allows them to do their jobs.

This will happen to more people, it's our government butting in and not insensitivity.

Geohde said...

Your response was very restrained. What an unpleasant phone call to field.

J

Kami said...

A well done letter. I wish I had done something similar after we lost our son because of how poorly we were treated at the hospital where I give birth. I still fantasize every once in awhile about telling of the perinatologist that I had. I take pleasure in knowing she has a less than stellar reputation with other doctors.